Tears filled my eyes as I listened to the cell phone call to my husband. I couldn't stop the tears. Even now as I write this I have to redirect my thoughts from wanting to cry. Danny's voice was upbeat because he was planning to help someone out. Danny knew the man from the Congenital Adrenal Hyperplasia Message Board he established about five years ago. When we found out our son had this condition, Danny used his computer programming talent to get it going. Now it is a comforting refuge to those with the condition and who have family members with it. The CAH condition is rare so it is uncommon to know another person who has it. Parents get a lot of help from the site. And people visit from all over the world. The message board is usually the number one visited site under the topic on search engines. Through the message board lots of questions are answered, concerns are discussed, information exchanged and people have some refreshing support so they don't feel alone in dealing with this condition.

The man and his wife from West Virginia had just lost their little girl. Their only child had CAH and had gotten sick. Then she had an adrenal crisis and her heart stopped. She was only 14 months old. The parents worked at Wal-mart and didn't have insurance. Danny was working to get some donations for the family through the message board. He also called our brother-in-law, Tim, who is a manager at a Wal-mart and asked him about their situation. Danny found out they have a critical need fund for such instances. He was glad to tell the guy this information. And then the two talked of how they could get a Pay Pal account on the internet so they could receive the money quickly for the funeral and hospital bills. Danny said he couldn't imagine how it would feel to lose a child. The man said he has never hurt so bad. Danny ended the phone call encouraging the man by letting him know he's still welcome on the CAH message because he's part of the CAH family.

Our son, Jonathan, has been through two adrenal crises but of course we still have him. And our daughter, Ginny, has never had one. I thank God for the privilege of having my children near and my heart and prayers really go out to this young family. I'm glad my husband was able to help them out in such a difficult time. I'm proud of him.